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Our Stories

Shannon's Story

Over the past nine years, 17 year old Shannon has experienced the difficulties of living with a chronic illness while trying to going about her everyday life. At the age of eight, Shannon had her first seizure. At the hospital, she was diagnosed with temporal lobe epilepsy. She describes her seizures as the ‘funny feelings’.

Read Shannon's Story

Lauren's Story

In an instant, Lauren went from being a normal kid to having to go to the hospital three times a week for dialysis.

Read Lauren's Story

Ailís's Story

In 2017, Helium Arts’ Pop Up Picnic visited family homes in Kildare, bringing a sprinkling of joy, creativity and play to young children with complex needs. One of those children was Ailís, who was born with a rare genetic disorder and has both complex intellectual and physical needs.

Read Ailís's Story

Stephen's Story

Stephen enjoyed his day-to-day life like every child, until he got his first seizure at 13 years old. A short while later, he experienced a second seizure and was diagnosed with epilepsy.

Read Stephen's Story

Sophia's Story

Sophia is 14. This year Sophia participated in a Helium Arts’ project, bringing together a group of teenagers over the course of 2018 for artmaking workshops in partnership with Epilepsy Ireland. The group Sophia worked with all have epilepsy, many with additional needs. They called themselves Electric Feathers.

Read Sophia's Story

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We would love to keep in touch to tell you about what's happening in our creative programmes supporting children and teenagers managing long-term health conditions across Ireland to access a meaningful creative and social outlet. We will also send you details from time to time on our events, fundraising activities, funding and sector news.

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Contact Us
+ 353 (0) 44 93 96 960


CHY Number: 19236
CRA Number: 20075200
Companies Registration Office: 486621


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Helium Arts
Top Floor
22 Pearse Street
Co. Westmeath
N91 VYP0




Arts Council


Department of Culture, Heritage and the Gaeltacht

This website has been part funded by the
Department of Culture, Heritage and the Gaeltacht.